Category: My Health

  • #Dystonia Awareness Month – Paroxysmal kinesigenic dyskinesia (PKD)

    Todays spotlight is on Paroxysmal kinesigenic dyskinesia (PKD) PKD is also known as PxMD-PRRT2 (previously named DYT10), is characterized by episodes of dystonia and choreoathetosis that are triggered by sudden movements or when startled. Episodes usually last seconds or minutes. In some cases, as many as 100 episodes can occur in a single day; in…

  • #Dystonia Awareness Month – Paroxysmal nonkinesigenic dyskinesia (PKND)

    Todays spotlight on Dystonia is Paroxysmal nonkinesigenic dyskinesia (PKND) PKND is a disorder characterized by episodes of dystonia and choreoathetosis. Choreoathetosis is characterized by irregular, rapid, jerky movements that may occur in association with slow, writhing motions. Episodes may last from minutes to hours and can recur multiple times per day or per month. Episodes…

  • #Dystonia Awareness Month – Dopa-responsive Dystonia (DRD)

    Today’s spotlight on Dystonia is… Dopa-responsive dystonia (DRD) DRD is a general term for a few disorders in which generalized dystonia and Parkinsonism are present and often dramatically respond to treatment with levodopa. Levodopa is an amino acid that is converted to dopamine. Dopamine is a brain chemical that serves as a neurotransmitter and is…

  • FitBit for August2020

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    Here are August’s stats according to the FitBit website. 95,454 steps 11 floors 70.88 km 75,384 calories Actually got more steps in than I did in July, which was actually shocking since I didn’t feel like I was very active in August – but apparently I was more active than I realize. I am hoping…

  • September is #Dystonia Awareness Month

    As anyone who has been following my blog for a while will know I have been diagnosed with generalized Dystonia, what you might not know is that September is Dystonia Awareness Month (it is also another awareness month for Polycystic Ovarian Syndrome that I have been live with for virtually the same amount of time…

  • Update on Dexcom G6

    Well the Dexcom came in just over 1.5 hours ago and Norman has already applied it, and pleasant surprise my phone found it right away as shortly thereafter so did the receiver itself. Thus that is a point in its current favor over the faulty one that was shipped. It will be interesting to see…