1) What do you wish your HCP or your device manufacturer knew about the DOC?
I don’t really know, maybe that there are a number of people out there with D who choose to network and ask questions to find answers or to at least be more informed then they might like us to be for what ever reason.
2) How much information do you share with your HCP about the DOC?
I haven’t really talked to my GP about the DOC since I don’t see her all that often, couple times a year on average and my Endro not at all since its not something that seem’s relevant to do so in general.
3) What do they think about your involvement in the DOC?
It is what it is, as in I’m not as active as I could be and at times not as active as I wish to be – but at other times I’m just at the level that works for me over all.
4) What is the deciding factor in how you filter your questions between the DOC and HCP?
No actual though process is in place for this because I just don’t connect the two – mostly because when I’m in to see my GP its nothing to do with D in general and mostly because its the furthest from my mind when I am seeing her.
Q1. What was the best interaction you’ve had with a diabetes educator/HCP?
I’ve never had any interaction with a DE that I am aware of, as to my GP shrugs she’s human
Q2. What are your diabetes educator’s credentials/HCP?
My GP is just a general GP no specialties that I know of and I don’t have a DE
Q3. Have you ever had to fire a diabetes educator/HCP?
Q4: What’s the most important/significant thing a diabetes educator/HCP ever taught you?
Nothing as yet
Q5. What do you want a diabetes educator/HCP to teach or clarify for you now?
Q6. What would you like to tell your diabetes educator/HCP?
A world of a lot of things, but since she won’t understand its wasted breath.
Q7. What can diabetes educators/HCP learn from the DOC?
A Lot – as in to much to name off
Day 28 of the 30 Days of Diabetes, todays question is Are there any web sites, blogs, etc you recommend to others with Diabetes or even those who don’t have diabetes?
Diabetes Living is a site I do recommended but only because of the magazine they put out which I find helpful and handy. I also recommend the CDAs web site (if a fellow Canadian) or the ADA (if they are in the US that is). Though there is a site called TuDiabetes which has proven to be to degrees helpful, its one of those sites that has really gotten many into the DOC.
Day 27 of the 30 Days of Diabetes, todays question is Are you active within the DOC (diabetic online community)
To a degree I am yes, I tweet in a tweet chat once a week as able – but other wise not so much. I do write about my diabetes and post articles or links to what I think are good articles on diabetes so that others might read them as well.
I’m going to be doing my own take of the series of 30 Days of, that I’ve been doing for a while now – this is based off of a tumbler post I saw a while ago asking Qs about Diabetes which got me thinking – this is the result of that thinking process.
Day 1. How old were you when you were diagnosed? And/or how old is your diabetes now?
Day 2. What was your first reaction to your diagnosis?
Day 3. Have you ever been to diabetes camp/events? Have you made any friends that way?
Day 4. Do you know any other diabetics? (both online and IRL)
Day 5. Pump, shots, or something else? Why? What meter/pump do you use?
Day 6. Do you advertise it or try to hide it? Any reason why?
Day 7. What’s your favorite diabetic related book/movie?
Day 8. Did you have to make any major lifestyle changes when you were diagnosed?
Day 9. Have you ever traveled far away with it? What was that like?
Day 10. What was your scariest diabetes moment?
Day 11. What’s your record for highs/lows?
Day 12. How’s your relationship with your endocrinologist?
Day 13. What’s your favorite diabetes joke?
Day 14. Have you ever gotten in trouble for doing something diabetes-related that someone didn’t think was allowed? (Bolusing in class, blood sugar test in a meeting, eating at work, etc)
Day 15. What’s your favorite oh-gosh-my-diabetes-hate-me-for-eating-this food?
Day 16. Do you own/use any diabetic cookbooks?
Day 17. Has being diabetic gotten you any privileges? (scholarships, special treatment, etc)
Day 18. What advice would you give a newly-diagnosed diabetic?
Day 19. What’s your best diabetes moment?
Day 20. What’s your worst diabetes moment?
Day 21. Do you feel there is enough education about diabetes? if not why not if yes why yes?
Day 22. Fitness wise how does being diabetic effect this side of things?
Day 23. What is one of the things about diabetes that you dislike the most?
Day 24. What is one of the things about diabetes that you like the most?
Day 25. Other then being diabetic, do you have other medical conditions which impact your treatment or how you live as a diabetic?
Day 26. If you had to give an over view of your version of diabetes what would you have to say?
Day 27. Are you active within the DOC (diabetic online community)
Day 28. Are there any web sites, blogs, etc you recommend to others with Diabetes or even those who don’t have diabetes?
Day 29. What is one BIG thing you wish you could do but feel that diabetes prevents you from doing it?
30. Give a diabetic shoutout!
1) What is your perception of the FDA or your country’s regulatory agency if outside the US?
Never really given it much thought since the FDA is more in the news then my local one, all I do know is that if something gets approved down in the US that its likely a a few years before it will be approve here if at all.
2) How has your country’s regulatory agency positively impacted your life with diabetes?
I think its had a better impact on it then the USs FDA has had on its own population at times since we don’t tend to approve the drugs till after they have been on market down in the US and proven or disprove itself (save the issue with avandia, that seems to have slips though).
3) How would you like to see your country’s regulatory agency improve?
At times it would be nice if the drugs which are open in the US to get could be gotten here but at the same time, I like the fact that the US get to run the trial first before we do, gets the bugs worked out so less complications on our end it does seem.
4) What can the DOC do to help improve regulatory processes?
Nothing that I am aware of right off the top of my head
5) Do you think it would be easier to live with diabetes in another country?
NO! … I did live in the US for a short period of time and had worse care for my diabetes then I’ve ever had to live with since being told I was diabetic, I’d not live in the US for their health care system less I have little to no choice in the matter. Even the UK isn’t high on my list of a country to live in when it comes to medical care, I like Canada just fine when it comes to medical care, might not be great at times but it hasn’t proven to be an issue as yet to me.
6) Would you be willing to move to another country if a device like the APP was available there and not foreseeable in yours?
I have no idea what APP stands for, and I can’t see any country outside of canada being of interest to me to live in when it comes to medical care or social service system that is in place.