Tag: chronic illness
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Missing from the Data: Why Representation in Medical Research Matters
When medical research excludes disabled, intersex, and marginalized groups, the consequences aren’t just academic—they’re personal. This article explores how underrepresentation in research impacts care, and why your lived experience matters.
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The Only Group Anyone Can Join: The Unpredictable Reality of Disability
Disability is the only identity you can acquire in an instant — through illness, injury, or age. This post explores why accessibility should matter to everyone, and why denying disability — even quietly — harms more than just ourselves.
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Burnout, Breakdown, and Being Disabled: When You’re Out of Everything
Disabled burnout isn’t just stress — it’s survival fatigue. From medical burnout to social exhaustion, this post explores what it means to burn out as a disabled person and how rest, empathy, and systems change are all part of recovery.
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Disabled Life Diary: July 12, 2025 – Humid Days, Low Energy, and Wheelchair Hopes
Hot weather, low energy, and a few small wins. On July 12, I battled heat, fatigue, and a sluggish AC while trying to stay productive. From wheelchair push tracking and low-calorie intake to laundry, Minecraft editing, and advocating for better mobility gear, it was a quiet but meaningful day in disabled life.